The Rare Disease Society of South Africa (RDSSA), a community association that offers patient care and support, runs this annual fundraising event. The initiative acknowledges the plight of rare disease patients and their respective families who have felt the impact of these disorders. The RDSSA is a beacon of hope for families affected by rare diseases and provides the resources for medical care and practical aid for individuals suffering from life-threatening diseases.
This year's theme, 'Living with a Rare Disease', advocates solidarity and togetherness and the RDSSA is urging the community and broader public to be an ambassador for Rare Disease Day.
Members of the public and rare disease community can also SMS 'Rare' to 38232 to help raise funds for individuals living with rare diseases. For more information, go to www.raredisease.co.za.
